Forming International Guarantees of the Right to Personal Integrity in the Genetic Research and Genetic Technologies Application Field
https://doi.org/10.24833/2073-8420-2025-3-76-42-48
Abstract
Introduction. The right to personal integrity as a fundamental somatic right has specific features in its legal entrenchment within the sphere of genomic research. These specificities are manifested in the diversity of its sources, as well as in the uneven reflection in the norm-setting activities of the two main actors in this field: UNESCO and the Council of Europe.
Materials and methods. A whole range of scientific methods were used in the course of the study. Among them are comparative legal methods, logical analysis, and others.
Research results. This article focuses special attention, in the first place, on the norm-setting activities of UNESCO in ensuring the right to genetic integrity at the universal international level and on the legal instruments it adopts in this area. In the second place, the article analyzes the provisions of the law of the Council of Europe, under whose auspices the Oviedo Convention and a number of additional protocols to it were adopted, which together form a unique regulatory framework for guaranteeing the right to bodily integrity at the international regional level in Europe.
Discussion and conclusion. The article substantiates the fundamental nature of the right to genetic integrity as a basis for formulating human genetic rights. 
Keywords
About the Author
E. А. TorkunovaRussian Federation
Ekaterina А. Torkunova, Candidate of Sciences (Law), Associate Professor, the Department of Integration Law and Human Rights
Moscow, Russia
References
1. Kalinichenko P.A., 2020. Global'noe i regional'noe regulirovanie issledovanij i razrabotok v oblasti chelovecheskogo genoma i ih prakticheskogo ispol'zovanija: osobennosti predmeta i podhodov [Global and regional regulation of research and development in the field of the human genome and their practical use: features of the subject and approaches]. Mezhdunarodnyj pravovoj kur'er [International Legal Courier]. № 3-4 (39-40). S. 20-25.
2. Ten Have H., 2008. Dejatel'nost' JuNESKO v oblasti biojetiki [UNESCO activities in the field of bioethics]. Kazanskij medicinskij zhurnal [Kazan Medical Journal]. Vol. 89. № 4. S. 377-383.
3. Torkunova E.A., 2024. Zapret evgenicheskih praktik v Evrope: politiko-pravovye prichiny [Prohibition of eugenic practices in Europe: political and legal reasons]. Moskovskij zhurnal mezhdunarodnogo prava [Moscow Journal of International Law]. № 4. S. 46-56.
4. Andorno R., 2004. The Right Not to Know: An Autonomy Based Approach. Journal of Medical Ethics. № 30(5). P. 435–439.
5. Baslar K., 1998. The Concept of the Common Heritage of Mankind in International Law. The Hague: Nijhoff.
6. Francioni F., 2007. Genetic Resources, Biotechnology and Human Rights: The International Legal Framework. Biotechnologies and International Human Rights. Ed. by F. Francioni. Oxford: Hart Publishing.
7. Knoppers B.M., 1999. Le génome humain: patrimoine commun de l’Humanité? [The human genome: common heritage of humanity?]. Montreal: Fides.
8. Mann J., 1996. Health and Human Rights: Protecting Human Rights Is Essential for Promoting Health. British Medical Journal. № 312. P. 924-925.
9. Ruggiu D., 2018. Human Rights and Emerging Technologies: Analysis and Perspectives in Europe. Singapore: Pan Stanford Publishing.
Review
For citations:
Torkunova E.А. Forming International Guarantees of the Right to Personal Integrity in the Genetic Research and Genetic Technologies Application Field. Journal of Law and Administration. 2025;21(3):42-48. (In Russ.) https://doi.org/10.24833/2073-8420-2025-3-76-42-48
                    
        



















